Rising Dementia Care Burden Many Families In Malaysia Still Struggling Alone

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MALAYSIA’S rapidly ageing population is putting unprecedented pressure on families, with doctors warning that dementia care is fast becoming one of the country’s most urgent yet dangerously overlooked healthcare crises.
Behind closed doors, caregivers are burning out, resources remain scarce, and the nation is sleepwalking toward a demographic disaster, according to Dr William Lee Wei Kiat, Consultant Geriatrician & Physician at the Oriental Melaka Straits Medical Centre.
Malaysia is already grappling with an estimated 200,000 to 216,000 older adults living with dementia today, a figure projected to reach 668,000 by 2050, according to the Malaysian Research Institute on Ageing (MyAgeing).
Yet the medical infrastructure remains far behind. As of 2024, there are only over 60 trained geriatricians serving both the public and private sectors combined; one for every 10,000 older adults. The shortage is so critical that many dementia cases go undiagnosed or are mistaken as natural ageing.
One case that stays with Dr Lee is that of a 70-year-old “Uncle Chan” with moderate dementia. During a visit, the patient suddenly stood up, muttering about haunted places and trying to leave.
Dr William Lee Wei KiatHis nephew panicked and tried to stop him, until Dr Lee and a nurse calmly intervened. Stories like this are common in Dr Lee’s work, showing just how tough dementia care can be for families.
Afterward, the nephew said, “I’m scared he won’t come back, will lock himself away, and shut everyone out. My parents are worn out, and no one else will help.” In that moment, Dr Lee saw only helplessness; a quiet, lonely struggle as families face complex conditions with little to no support.
Dementia care often requires round-the-clock supervision, emotional resilience, and behaviour management that few families are equipped for. The middle stages are particularly difficult. Patients may wander, hallucinate, or become aggressive.
In Uncle Chan’s case, despite having ten siblings, only the nephew’s parents were involved in caregiving. “Everyone assumes someone else will step up. Eventually one person is left holding everything,” he explained.
The country is set to become an aged nation by 2030, when 15% of the population will be 60 or older, and a ‘super-aged’ society by 2056. Currently, about 9% of seniors live with dementia, with rates soaring to 1 in 3 among those over 80, according to the National Health and Morbidity Survey. Many families only seek help when symptoms become severe or dangerous.
The economic toll is also rising. In 2022 alone, MyAgeing reported that dementia including Alzheimer’s affected between 202,000 and 216,000 older Malaysians, costing the country RM7.9 to RM8.5 bil, or nearly 0.5% of GDP.
This includes healthcare, lost productivity, and unpaid caregiving by family members who often scale back or quit work to look after ageing parents.
Dr Lee’s concerns are shared by others. Bayan Baru MP Sim Tze Tzin recently urged the Parliament to set up a Ministry for Senior Citizens, citing the lack of focus on ageing issues.
Cheah Tuck Wing of the Malaysian Coalition on Ageing urged the government to expedite the Senior Citizens Bill, warning that caregiver burnout is leading to family breakdowns and elder abandonment.
Meanwhile, Professor Datuk Norma Mansor, Director of the University of Malaya’s Social Wellbeing Research Centre added that protecting the elderly must be a shared effort across government, private sectors, and communities.

Other nations have begun tackling the issue head-on. Singapore and Japan, for example, have national dementia strategies and support systems.
While Malaysia has National Dementia Action Plan, first proposed in 2019 but it’s still awaiting full rollout and funding. Key areas like early screening, community care, and public education remain underdeveloped.
Malaysia must pivot to the World Health Organisation’s “active ageing” model, which promotes physical health, social inclusion, and lifelong learning.
“It’s not just about adding years to life, but life to years. We need policies that help seniors live independently, not just survive,” noted Dr Lee.
For families already affected, he urged them to seek professional help-medical consultations, long-term care planning, and building a network of support.
“Dementia isn’t just old age. There are therapies that can slow it if caught early.” he added.
But the bigger shift must come from society. “Right now, dementia is seen as a family’s private burden. That mindset must change. This is a public health emergency,” he stressed.
Unless Malaysia acts now with investing in trained professionals, accessible care, policy reform and public awareness, the nation will not be able to withstand the full weight of its ageing future. ‒  Focus Malaysia

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